-
The Sad Clown
I went to Mom’s apartment alone last night. I knew, with our Aunt and Uncle coming today, that it would be the last moment of calm in her studio at the care home I could be with her in her space, unaltered, one last time. It was sad and comforting. I lay still and fell asleep in the space, on her bed, where she had lain so many evenings and afternoons before.
As I was packing her stuff, gently, for the last time. I found a silver coin. It fell off of something so that I could find it. Then it fell off while I was packing the car so that I could again find it. I’ve again put it somewhere safe, forgotten immediately. I will find it again when I need to. It only occurs to me now, when I get up this morning and wonder where it is, that it was meant for me. It was a silly oversized coin from a casino, somewhere that wouldn’t have been of any significance to her. On the back was an image, and above a title, The Sad Clown.
Pagliacci, the sad clown. She understood a certain sadness that we both shared. She knew that there were not always happy endings, she lived many lives without one. But this suffering, it makes us human. This is not American film, this is closer to an opera. Don’t be afraid to cry the sad cries for your self, your loss, your life. It’s probably not just going to be ok.
Now I must go, and be, but I take this lesson with me today. If I must be the sad clown, the jester, I can do so once again, for her, for peace.
-
She’s Gone
As simple as that, she felt us, she left us. How strange it is to write these words, what a strange relief. Now I feel terrible guilt. But to recognise them is to help the feelings to be seen and heard and then go away. They are not destined to become part of our hardwiring, like before. For now, we will make new memories, new patterns of being, so that our children and our loved ones know that it’s ok. It’s ok to have feelings, to feel them. Yes it is hard, and sad, and difficult. Life is not always easy. Why do we think we must live without suffering? Why have we been sold this American Dream? The trappings of consumption have sold us the lie that to have the perfect life is possible, if only we buy the newest and best, next thing. But that is all for now on that topic. I must stay rooted in the moment here.
Once in a lifetime you die. To be able to be a part of that transformation is a gift. We have been here – to be present, to hold space, to participate in that transition – and it was a gift to know when it was coming. I will have my mother with me forever, for we are the keepers of the story, the chaplain reminded me. She was there, when I came out of the room where mom was, and she was the only person I asked to see. No more medical people. Just me and Mom and God.
I will write more later, as for now I must be present.
-
Lying In
We are now all in the hospital, Mom, Me, Camille, two cots next to Mom’s hospital bed, and a lot of bags surround us. I have such absolute deep sorrow in me. At the same time, I am thankful that she is still with us. I wonder if her laboured but relaxed breathing will just stop. I wonder how it will end. My precious mother, now forgiven completely by me, free of the debts and disappointments of her life. I wonder if she feels that her’s was a life well-lived. What are her regrets? Does she think about that now or does she simply dream, visiting the memories of her life, passed, or does she create new ones for the future? She is doing her work, said Thalia, our hospice nurse and angel. What had me troubled was the work she was going through the other night, the night that we left her care home for what is told will be the last time. She was oh so very distressed, holding her forehead in either or both pain and worry. It was a terrible thing to watch, knowing that there was nothing I could do, I couldn’t reach her as the pain was too much. I could see all of the things she was facing. Sometimes it is hard to even separate emotions from physical feelings, when they are bad.
She’s better here, they said, she’ll get the comfort care she needs. Now we can rest with her, and lie down with her. But there are no more conversations, only monologues. I do love a monologue, just ask my husband, and now here lies my most captive audience ever. I should say the things I need to say, while she is still here in here body, at least a bit.
I must write this now as my body and mind are both so tired. I am not thinking well, straight or in any other direction. I am a crumpled paper bag, wet in the rain, that slowly takes on the moisture to soften, and then completely disintegrate onto the pavement. I don’t know what I am supposed to do. I have been doing my best to make this right, to do what I can to connect at the end, but it all seems so futile now. If I believe that her spirit goes on, that means I can speak with her after, too. To be in comfortable silence with her seems right, and why not?
There are many questions left unanswered, about our life together when I was a child, my father, so many things. She was the only one left to know things that will now die with her. I had questions to ask, but not the time. I was too busy worrying about her care, and her pain, and I, we, were drowning in the responsibility of it all, not knowing what to do.
So now I sit here, wondering, and waiting to know when she will pass. Any amount of time is a gift, but what do you do with it? I write in hopes that I can revisit, knowing that I will revisit these questions at a later time, all of them, and I will have to come up with the answers all on my own.
-
Intensive Care
It is not lost on me, as I come to the crossroads in the corridor, that on the left is the NICU and to the right is the ward which contains my mother’s room. This floor of the hospital is a special place, maybe even a portal for souls, on the verge of life, and death. To the left, the tiny babies in the incubators, fresh and clean to the world, knowing nothing but the inside world, the before, in the wombs of their mothers, and now, out, feeling in their bodies for the first time, wiggling, and wanting to sleep, be held and eat.
I’ll never forget the cries of my babies in the NICU, proof to me that they really do come with fully formed souls in them, babies. My Constantin would cry loud like his life depended on it. His cry, said the nurses, was not one to be ignored, ever, and he was sure he wanted to eat. His latch was difficult from the beginning, and he would pull off with resolute determination when he was done. Even in utero he would stretch, pushing to get out. I was worried that they had been given the right names, as they were taken out of me with a cesarean section, and I wasn’t sure who was who. But when I saw him stretch, I knew it was him. I knew him before he was even born.
And now I sit next to my mother, who knew me before I was even born, who had wanted a baby before me, but was told she couldn’t keep it, as she prepares to leave this world to go to the next place, the next body, the next life, I wonder what she felt before she had me. Did she feel my sensitivity before I came? Did she pass her knowledge, her fears, her experiences down to me, before I was even born? Did I know her as well, her soul having been so close to mine, as she grew my body inside of her? This I both know, and will never know, and in between this lies faith.
Faith that we have known each other, in this lifetime and before, and that we will continue to know each other in this lifetime and beyond, working through our cosmic knowing, finding our way, intersecting, forever knowing.
Just down the hall, life enters and is cared for with kid gloves as here we care for our mother, respecting her wishes and dignity and loving her just as she is, as she prepares to leave her body, with the same care and attention as those tiny babies, who are just on their way in.
For now I am still living in a world in which my mother exists, and for that I am deeply grateful.
-
Here We Are
Listening to Handel’s Messiah in mom’s room, at her bedside, in the hospital. What a moment to be alive. Here we are now, nothing else matters except this moment, and the hope of another moment with her, here, on this earth. Hoping that she hears these ancient notes and song and feels the spirit in her. And heaven and nature sing.
A long, slow build that starts in the second song of at least forty others, a piece created in love, praise, and admiration of the miracle of God, so many years ago, when a symphony must have been considered a modern miracle.
This moment will forever be mine, just as this music continues to live forever, centuries beyond its creation, the notes sing to create a long, deep, meditation on life and joy, themselves creating an opus of joy and beauty. So too will her spirit become timeless, a part of the ether of my life, my memory, and of all those others who have loved her.
Remember no matter how bad it may seem for you, that you have touched so many lives with your kindness, your spirit, your joy, your lessons. You may be an angel to someone else, having shown up in their life at just the right moment, when you needed to be there, and created a small miracle in their life, becoming part of their story. Their path, you may have changed it, a puff of encouragement, or aide, or reassurance, to keep them strong in their moment of darkness. A reminder that they are not alone. This is the God, the real miracle, to be able to see each other’s beauty, vulnerability, and humanness and to act with kindness and love. This I have learned by being with my mother, today, and forever, Hallelujah.
Well, the CD goes silent every few songs so I wonder if she really likes it or if she just floating in energy in the room and turning it off. What a journey she must be on. We all love a bit of drama in this family, so I’m sure she appreciates the operatic noise and intensity. It’s because of her, and PBS, that I love the opera. My god, the intensity, the passion, the depth of emotion. One of my classic Halloween costumes was the sad clown from Pagliacci. I had a poster of him on my wall, probably from in the fourth grade. This was my normal. It wasn’t exactly him, per se, but Picasso’s rendition. I guess I’d seen this painting at the Art Institute of Chicago, as this was our regular outing when we would go to visit Mom’s parents, Grandma and Grandpa D, in their very grown up apartment in Villa Park, Illinois. It was a tony suburb next to the even tonier suburb of Oak Park, where Mom had gone to High School for a time, and I think graduated, after their time in Oakland. So every holiday when we would visit, Mom and Grandma D would take us downtown to the museums, sometimes the Field where there was, and probably still is, the Fairy Castle, a dream dollhouse made for a Golden Age princess, probably a Field herself. Most often though, and this continued for many years, we would go to the Art Institute on most visits. Even then I was terrified of the 3rd rail of the El, and would imagine the worst possible fate for all of us, especially my little brother, and would hold him close to me, as close to the middle of the platform as possible. So off we would go, to see the treasures at the museum.. First, always, was the hall of armour, so wonderfully imposing. Then would be Sunday in the Park with George; I call it that because of the musical of that name, a delightful opus starring the glorious Bernadette Peters. Finally would be the Georgia O’Keefe painting of clouds over the stairs going down, a serene white hallway with natural ambient light – there must’ve been a skylight. Somewhere in all of this, surrounded by impressionist sunrises and post-war icons, was Picasso’s early period, and the loving portrait of the sad clown, with his white silk pyjamas with three big black pompons on the front, a stand-up collar, and a little hat. He was a youngish boy in this portrayal, perhaps one about my same size, at the time, so I really connected with his pale face and innocent poise.
I forget now why I’m telling you this story, but it seems important. I must go now to see my sister downstairs, while I can still do so in a world where my mother is alive and with us, for time is short.